Sunday, April 10, 2011

The New Normal

We are finding a new normal around here and it is hard. As I have said before running two households is hard. Seeing my Mom in this state is hard. Thankfully my heart is not hard and may not understand but my God does!!!! We have tried to keep things as normal for the boys as we can but sometimes it is impossible. For weeks I had to be at my parents at 6am and stay until after 7am to give iv infusions, then went back at 9pm and did the same again. Instead of being at my house working on the cookbook that was due for publication in May, I had to be back at the parents at 8am to take care of Mom. That left a few minutes in between for me to see my boys, make John's lunch and see them all off for school and work. I would stay at my parents once I went back at 8am until after the 2pm infusion ran. I would get home a little after 3pm and rush to get things done and then go get the boys from school and get supper cooked for the parents and us, then take it back over. Then head back home and do bathes and reading, Bible and time with the boys. I would put them to bed at 8pm and John usually was home by then and then at 9pm back over to my parents. Thankfully that is in the past. The new normal is: Getting up at 5:30am, getting ready, do devotion, take meds, make bed, do a load of laundry unload dw and feed the fish. 6:30am boys up, fed, dressed, devotion, amke John's lunch, give boys meds 7:45am boys and John out the door for work and school, I usually make my to do list, do laundry, load any dishes in dw, empty garbages, wipe down counters, answer emails, make phone calls 8:45am head to Mom and Dad's, get Mom up, give meds, make sure she has breakfast, unload/load her dw, do laundry, clean kitchen, talk with Mom, work on memory exercises, do PT exercises, write out any bills, do any farm paper work, make any calls for them 10:30am IF Mom is stable enough to leave by herself (and Daddy or brother are nearby on farm) I run down to town (3 miles) and pick up groceries, meds, go to bank, postoffice and run errands. Then I go back by to check on Mom and if she's okay I go home. I can see Mom and Dad's house from mine. I call about every hour and make sure she is okay. All the while working on house stuff at my place. I also have a morning snack. About 12:30pm I make sure of her pain level (sometimes I have to go back to give pain meds). I make sure she has lunch. Sometimes I stay on work on housework. I usually start supper prep for all of us then. I usually have lunch about 1pm. 3pm Usually Daddy is home or around and I call him and Mom and remind them of her 3pm meds (just one pill, an antibiotic). Then I satart wrapping up around home and have any cold things for supper already made. Then I go get the boys from school. 4pm Boys home no later usually than this. Give them and I snack, talk about their day, playtime. 5pm Finish supper, take supper to parents, playtime 6pm Feed fish, feed us 7pm bathes, call and check on Mom, John arrives home between now and 8pm. Bible reading, story time. 8pm Lights out for the boys, John showers and eats. time to chill with John. 9pm Call and remind Daddy to give Mom meds and tell them goodnight. More time relax. 10:30pm Bed So that is our new normal. It will to change again before long, as I will be going back to work June 1, here on the farm and at markets. The edges are still rough but we are blessed! Praying for Mom's memory to heal and the confusion to go away. Blessings!

Friday, April 8, 2011

The Last Month

Oh my! Has it really been a whole month since I last blogged?! Things hva ebeen hectic. It seems that is the norm in my everyday life though. I try to take one day at a time and ask God for his guidance and He sees me through. I am doing okay. Still battling staph infection in the sinuses. I will see the infectious disease doctor again next month. By the time I see him, I will have been on this regime of antibiotics for 5 months. I also had a molar tooth in very bad shape that we decided it would be in mybest interest to have extracted. An oral surgeon had to take it out and it was a doozie. The roots were twisted and one root was wrapped around a bone. The bone came loose and had to be filed down. One root was actually in the sinus cavity where the staph infection is. I probably should mention that I could not be put to sleep and gas makes me violently ill so I was numbed up for the procedure. Had it done on Tuesday and am still feeling the effects! AS of this morning John and I have lost 43 pounds together on the diet (in a mont and a day). It is going very well but is difficult at times. Very hard for southern girl that is used to down home cooking and not just eating it but producing it! :) I cannot wait to get the rest of our weight off and keep it off! John looked so handsome this morning! He is finally beginning to see the changes for himself. It's amazing to get up every morning and see you but a little smaller!!! The boys are doing well. Their allergies are going crazy. Mason is on several meds for them and eye drops by script as well as Singular for coughing asmatha. Little John doesn't have the asmatha but does the allergies! They went for their 6 month dental cleaning this week and got great reports. It looks as though they will not be loosing any teeth for awhile. The peds dentist thinks thye are behind at least 12 months. So they will be over 6 when they loose their first ones according to his calculations. Also they celebrated their 5th birthdays on the 22nd, with an army man/camo birthday party! We all had a blast and even my Mom was able to come. It was hard for her but she did make it! Yay! Speaking of my Mom; she has a little set back due to a change up of meds but is back to where we were before the "new" meds. The short term memory is short, no pun intended. It just isn't there. We still have months to go to see if it will return. She is still confused at times but seems more slear headed this week than before. We finally have some meds to help with the tremors as well and we are so thankful for that! She goes back to the neurologist the 19th and the rhuematalogist the 25th. Prayers please..... As for the farm. The pond is full, so the fish are happy! Cabbage is in the ground. Most of the beds are pulled up with plastic and drip tape. Some ground is left to disk up and then beds need to be made. We lost a few plums but everything looks great so far! All of the peaches look wonderful and we are thrilled! Cows are happy but we are still having to feed some hay. just bought another load this week. One stubborn cow got out again this week so the electric fence is goin up as we speak. I noticed when I left Mom she was on the back porch taking in the 70* weather watching the men folk in action putting the fence up. The blackberries and scuppernongs are also being worked out and trimmed this morning. And now, just now the school has called and said that Mason keeps picking at this place on his nose. they think it is staph. So I called the doctor and got him an appointment and off we go to see what it is. Please pray! Blessings!

Tuesday, March 8, 2011

How It Looks From Here

You know life just stinks sometimes. I have two of the sweetest, beautiful children in the world, the greatest parents and brother ever and a wonderful husband too. Things go along just fine and then one day life throws a pickle your way. You know the kind I'm talking about; so sour that you actually pucker and well it's a pickle you have to eat it. Not much else you can do with a pickle. It's not like a lemon (for making lemonade). LOL Anyhow, over the last few months it feels like we've been throw a jar of pickles. I will not lie, it has been awful at times.

Besides my marriage almost ending, myself having a serious staph infection in my sinuses (that I am STILL being treated for -3 months out), relatives passing away and my Mom's serious condition, we are thriving. There are days I forget how we are doing just that but for those of you that don't know it is by the grace of God. I have learned so much about myself the last month alone. God gets me through the days and at night when I collapse in bed of pure exhaustion beside my husband and we pray; I know everything is going to be alright. Praise HIM! Thank you Lord for your blessings!

Yesterday, Mom and I went back to the id doc (funny how we have the same one). She is getting better. He took out the picc line and she got to start on the oral version of the antibiotics. She is still dazed at times and gets things mixed up, she has little short term memory but we are blessed. The swelling/fluid seems to be decreasing in/on the brain. We see the neuro doc the end of the month. We will know more then about any permanent damage. There is high possibility of that but God has this. He will see us through! She still cannot remember meds and such and cannot do anything in the house (cook or clean). She sleeps a lot. The neuro doc said it is good for the brain to heal, so we let her sleep and we wake her for meals and meds. She is still on anti seizure meds as well. The home health nurse still comes as well as physical therapy but she seems to be getting around better!

In the meantime (actually in December) John and I decided to take charge of our health and change things up for the better. We waited until after Christmas was over but then the id doc would not give me the go ahead with the diet program. So we waited and waited and I finally decided it was now or never so we started on it this past Friday (3/5). It has been hard, very hard in fact. I want to be healthy and loose the weight but I love my food. I love everything about food; shopping for it, growing it, picking it, menu planning, preparing it and cooking it! Most of all I love eating it!!! This will not be easy for this southern girl! I guess I should be glad pickles are not allowed on this diet!!!! At least not the kind we've been served up lately! LOL


Blessings!

Sunday, February 27, 2011

More on Mom

We have a final diagnosis for Mom. She has HSV (Herpes Simplex Virus) and Viral Meningitis. She is very sick but getting better. The HSV is like a big cold sore eating away at the brain. It seems that is and the viral meningitis have went through the tough leathery outer part that protects the brain and is in the brain. Most people die from the brain bleeding and never even know they have this. We are blessed she is here. We brought her home on Friday. She has a picc line is on Acylivere (sp) by that and she is on many other meds by mouth. She is confused and somewhat disoriented most of the time. She has to have the iv infusions three times a day. Even though we have home health helping out I do most of the infusions. We have had family in from North Carolina and South Carolina. I am so tired but grateful we could afford the out of pocket to get her home and not have to send her to a nursing home (as that was the other option). The iv antibiotics were going to be $4200 for 8 days and the picc nurse found them cheaper else where (Walgreen's). Mom's short term memory may never return or if it is should return within 6 months. Someone has to be with her at all times and of course she cannot drive. She is weak but getting stronger. We are so thankful! Please pray for me as I run two households, stay with her most of the day and administer the iv meds and others as well. Please pray for her memory and strength!

Blessings!

Sunday, February 20, 2011

Broken

I haven't allowed my self to break down and cry until this morning. The hot tears roll down my face as I type and pray, all at the same time. My heart is beyond heavy and I feel the hurt dripping from it. Mason woke me at 4am with a cough and I couldn't sleep then.

Friday my Dad came home for lunch and my Mom was lying on the couch. She said her head was hurting. My Dad went out back to check on the dogs and came back in several minutes later. She was in the floor and didn't respond to him. He called me and she was rigid and still non responsive. I called 911. We got her to the local hospital and they did a CT scan and labs. Nothing except her sodium was low.

In the meantime my brother had went to get my sil from another hospital an hour away where she had been with her Mom that had just had brain surgery. They came immediately to the hospital.

Daddy I were with Mom while the nurse was changing out something on the iv. They had decided to admit her for observation. Then it happened, she started seizing. My Dad and I both were in shock. She was given Adavan. We would come to find out it was a grand mal seizure but not for sometime. Transport by ambulance was arranged to a larger hospital an hour away.

Mike had sent his wife home to get ready for their son's tournament basketball game and he waited with Mom. I took Daddy home to get a shower and I to get somethings to stay with Mom and a few of her things. I had to arrange for childcare for the boys their supper.

We finally got to the hospital and Mom was there in her room with Mike. Mom was out of it from the meds. Before the Adavan she didn't know much; her name and date of birth. By then it was about 6pm. My brother got a text from out cousin saying that my uncle (Daddy's brother) was not doing well and they needed to come. He was on the floor below in ICU. AS they went out the door CODE BLUE was called over the intercom, not once but three times. They were calling the doctors from Mom's floor there. I waited with Mom who was still asleep for an hour when Daddy reappeared. Uncle Virgil's heart had stopped, he was on a ventilator and there wasn't much time left. The doctors said he would pass before morning. None of us had eaten and by then Mike was back in my Mom's room. I had gotten Daddy and I a pack of peanut butter crackers and a Coke. John arrived then.

Daddy was give out and it was getting later. There was no change in Mom and we wouldn't see the doctor until morning. Mike, John and Daddy got to the waiting area in ICU right as the news was given, Uncle Virgil was gone. He and Aunt Bonnie (who passed away a year before from cancer) could be together again, in heaven. John stayed with me until after midnight and then went home.

Sleep was not found for me or Mom. They gave Mom her regular meds about 10pm and they kept her awake. She had not eaten or drinken all day and brought her a cold plate. I fed her what she would eat. By midnight, when John left she was confused and wanted up. She tried to get up numerous times while talking out of her head and pulling wires and leads off. By 3:30 I was exhausted. They came in then and gave her a breathing treatment and at 4:30 did blood work. She finally ate some breakfast (a few bites) I fed her and Daddy arrived at 8am. I started making phone calls and went down to the cafeteria and got him some breakfast. She was still groggy and confused.

Around 9am the neurologist came in and we could not have been more pleased; it was Daddy's neurologist! He talked with us and gave us some hopeful news. He seemed to think that Moms problems were a myriad of factors. An infection, low sodium, prolonged use of non narcotic pain meds and some other minor things. However, he wanted to do a EEG and an MRI to make sure everything was normal there.

I went home to see the boys and sleep an hour or so and Mike went to stay with Daddy, after feeding all of the cows on 2 farms.. John and I picked up Mike's boys and one of their friends and took them to the hospital about 3 with us so they and Mike could go see Alabama play a game they'd had tickets for. Daddy went home about 4pm.
The tests were done and it was not what we had wanted to hear. The EEG showed she is having continual seizures just not grand mals. The anti-seizure meds were started. The results of the MRI showed an abnormality on the right side. We were told either a tumor or fluid. They also did a lumbar puncture. Mom was asleep with the help of Adavan (used to keep her calm and still during lumbar puncture).

The nurse came in with more antibiotics for the iv. She told us the doctor would be around in the morning (this morning) to explain things but he was treating Mom for possible meningitis. Mike made it back. He stayed with Mom last night and we brought the kids home. After paying the sitter (our niece) we hit the bed. My bed had never felt so good!

Please pray for us and the doctors but especially my Mom. She is very sick. We are trying to make arrangements for someone to stay with her at all times, make arrangements for the boys, get John back to work on Tuesday, work around the visitation and funeral and keep up with farm work as well as household things.
I will keep you posted as time allows.

Tuesday, February 15, 2011

Life Here

Life here lately has been a more than interesting. Thankfully this morning things are quiet here on the farm. Today, that is NOT a good thing. All the boys (the nephews and our twins) are at their schools.

Mom is at the family doctor for more antibiotics. The immunosuppressant drug (Imuran) that she is taking to fight off the Polymycitois is really taking a toll. She is staying sick more often than not.

Daddy has taken his sister with him tot he hospital to see their brother who is very sick in ICU. This brother (my uncle) Virgle, had a heart attack last week and fell during it breaking his back. He was at home trying to get to the door to let the home health nurse in. He did get to come home for a few days before getting sick with c. diff and colitis. His white cell count was down yesterday to 27,000 from 33,000 the day before.

Mike and Pam (brother and sil) are at the hospital with her Mom. She is currently in surgery having a brain tumor removed (we hope they can get all of it). Lord help us! We are so blessed but there are days when I have to wonder how much more?. The boys also have the between sickies....you know where you're waiting for the snot to turn green and the cough to get worse just so the doctor will call in antibiotics?!

I am home taking things in today. My energy levels had returned before the stomach bug hit us and now we are working on trying to get them back once again. I know i have one more month of the antibiotic treatment for the staph infection, possibly two....according tot eh infectious disease doc.

John and I had planned to get started on a diet regime the first of the year but it was a no go from the id doc. He said not until I am well. I am tired of waiting and it will not interfere with my meds and should only give me energy so We are preceding with it this weekend. I am so ready to loose some of this weight. Maybe just maybe I might have more energy then. I will see the id doc again March 7th. We have a friend doing this diet and she is doing great. She is a fellow blogger. The diet helps to reset your metabolism and that is what we both need!

The bladder surgery is still on hold. GRRRRR! That so needs to be taken care of. However, I have a tooth that needs pulled and the id doc said to get it done asap. I also have some other dental work that needs done so I guess we will proceed with that as well.

Yesterday was my Mom's birthday and of course Valentine's Day. My Mom had a great birthday. We had a couple of her carpets cleaned for her, gave her some flowers and a Willow Tree thingy (what are they called?). The boys made her and my Daddy Valentine's. They were so thrilled that the boys can sign their own names! I also made her (and hubby-for Valentine's day) a strawberry pretzel salad (each). Hubby was quite happy too! My parents gave me money for my day, while John and the boys gave me cards, a Chondra Pierce dvd and a beautiful quartz necklace from Family Christan Bookstore. I am so happy that i have a Valentine to celebrate with.

Today I've got to order a few things for the diet, check on Braves tickets (we are taking the boys to Atlanta for the weekend soon-since the Disney trip is on hold until next year), I also have an order to get made (a case of Hearthside Coffee) and shipped out, I need to paint the piggies and do some regular household chores. I would like to get some reading in also. I am currently reading The Dirty Life: On Farming, Food and Love by Kristin Kimball. It is really good, for me anyhow. Someone that doesn't enjoy talking about cows and such might not enjoy it. I think it's a great read though. Read more about it here.

Have a blessed day!

Saturday, February 5, 2011

Week in Review

This last week has definitely NOT gone as planned. I do not have a prefect life by any means, I am human and so is John. I am keeping things "real" here at Blessed Frugalness. We've had some issues in our marriage, neither one of of realized them or if we did chose to let them slip by until it was almost too late. We are having to work hard on our marriage that was almost lost. I encourage you to take time for each other and do that often. God is top priority for us and that is the way it should be. He is over this marriage!

This on top of me being sick with this staph infection. I took my Mom back for her monthly check up to the rhumatologist on Wednesday. He was running very late and we got home late. Add in Mason getting sick in the middle of the night Wednesday night. He was over the toilet every 15 minutes or so. I made us a pallet in the bathroom floor and we camped out. I thought he was having reflux problems. Then Thursday at lunch the school called and John was vomiting as well. Yeah...sure sign it was a tummy bug.

Then Thursday afternoon we got hit with a surprise ice and snow storm. No, the meteorologist were not predicting it. John was stuck with a load of haz mat waste at the top of an incline on the interstate when the dot decided to shut the interstate down for 2 hours (until the temps started climbing). Thankfully he finally made it home at 10pm that night.

Friday I kept both boys home with me and we all rested. John had to report to work, unfortunately.

Today, John had to work again and the boys and I stayed home until late this evening. My Dad kept them while I ran to Wal-Mart and the post office to collect our mail. John brought home take out from the Mexican place close to his work for supper. We just finished watching Gaither Gospel hour and now the boys are playing catch with their Daddy. It's almost their bedtime and I am thinking seriously of following fairly quickly. Tomorrow is a shower and church day, then we are having our own little Super Bowl party! :)
Monday I go back to see the infectious disease doctor.

Have a blessed Sunday!